Fundraiser for SUHBA Member

Family and friends, along with Kalamity dance group are planning a fundraiser for the Jessop family. Please click here for more information.

Lester Jessop of Prime Excavating has three kids,9 year old Daron and 4 year old twins Aubrey and Angie that have a rare neurologic disease called PKAN (Pantothenate Kinase Associated Neurodegeneration). There is no cure but there is a foundation that has identified a compound that they believe may change the course of this terrible disease. They have had huge breakthroughs in testing the compound on human cells and mice and received amazing results. They have met with the FDA and the FDA is supportive of the foundations plan to move the compound quickly into humans.

The price of the compound is extremely expensive and for a family that has to have it for all 3 of their kids to live is astronomical. We are trying to raise as much money as possible for the family. Please donate what you can, every little bit helps.  All proceeds will go to the Jessop family.